There is a probable diagnosis for my nephew that is, unfortunately, much worse than what they thought before. He spent all day on Friday at Children's in Seattle and they think he has Long QT Syndrome.
http://www.nhlbi.nih.gov/health/dci/Diseases/qt/qt_whatis.html
I just found out so I'm still reading about it but I can't imagine having to deal with something like this for one of my own children. It's hereditary so now it's got me worried about my own kids.
More to follow when I get more info.
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